We are so deeply sorry for your loss. Twin to twin transfusion syndrome is such an evil disease. It does not care who it hurts and only affects those that want their babies more than anything in the world. We want you to know that we will never stop fighting it and we will honor your babies in doing so.
Everyone in the Foundation has experienced twin to twin transfusion syndrome with all different outcomes. Those of us that have experienced the loss of our twins or triplets, are ready to talk with you and let you know you are not alone. Maybe you are feeling guilty, don’t know how to get through certain days, or don’t know what to say back to those that hurtfully say, “At least you have your husband or you can try again.” Maybe you just can’t get out of bed in the morning and you need to know that ‘neither could we’. We have been there and can help you. You are not alone.
The Twin to Twin Transfusion Syndrome Foundation has a very supportive bereavement packet that we can send to you that has been written by parents that know your sorrow because they have lived it. They want to help you. Included in the packet are booklets about anger, father’s grief, stress on marriages, how to get through holidays, how the mom can best help herself, poems, and more.
If you need another mom to talk with please call the foundation at 1-800-815-9211.
"Thank you so much for being there for us during this very difficult time. My daughter lost both girls but your help and care were a huge comfort. May God Bless you."