Twin to Twin Transfusion Syndrome Foundation Home Page

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Established in 1989, The Twin to Twin Transfusion Syndrome Foundation is the first and only international 501c.3. nonprofit organization solely dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals and other caregivers before, during and after a diagnosis of twin to twin transfusion syndrome. We are dedicated to saving the babies, improving their future health and care, providing NICU, special needs and bereavement support, furthering medical research and keeping families together the way twins are meant to be.

GET THE ANSWERS TO THESE QUESTIONS ASAP

Confirm at First Ultrasound (Hopefully by 12 Weeks)

1. Is the placenta monochorionic?
2. Are the babies the same sex?
3. Can you see the dividing membrane?
4. Is the placenta anterior or posterior?
5. Do the cords have 3 vessels or 2?
6. Are the cords fully attached to the placenta?

Ask at Weekly Ultrasounds (Starting at Week 16 to Delivery)

7. What is the largest vertical pocket of fluid for each baby?
8. Can you see the bladder of the donor baby?
9. What are the weights of the babies in grams?
(every 2-3 weeks)
10. Are the dopplers normal for both babies?
11. Is the heart of the recipient baby enlarged or thickened?
12. Does the recipient baby have hydrops?
13. What is the measurement of your cervix, is it long and
closed or thinning or dilated?
14. Is the smaller baby growing at the same rate?
15. What is the fundal height?

Step 2

READ EXPLANATIONS OF THESE QUESTIONS

Step 3

CREATE A MEDICAL PLAN

Your Babies Can Make It!

What is TTTS?

-Twin to Twin Transfusion Syndrome (TTTS) is a disease of the placenta (or afterbirth) that affects identical twin pregnancies.

-TTTS affects identical twins (or higher multiple gestations) who share a common monochorionic placenta.

-The shared placenta contains abnormal blood vessels which connect the umbilical cord and circulations of the twins.

-The common placenta may also be shared unequally by the twins

-The events in pregnancy that lead to TTTS are all random.

-TTTS is not hereditary or genetic, nor caused by anything the parents did or did not do.

-TTTS can happen to anyone.

The TTTS Foundation In The News

Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
> read more...

Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
> read more...

Twins Days August 4, 5, 2018 Twinsburg, Ohio

Come and meet Dr. Julian De Lia, the pioneer of laser surgery to treat TTTS, and Mary Slaman, Founder and President of The TTTS Foundation
> read more...

Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
> read more...

Official TTTS Foundation Events